Diversity in Research: Resources

Initiatives

Increasing diversity in research - The Centre for Ethnic Health Research (UK).

INCLUDE - Better Healthcare Through More Inclusive Research. NIHR (UK).

• includes guidance and other resources

Trial Forge - Improving trial diversity

Trial Forge is a multi-partner initiative to improve diversity in trials. Includes sections on:

• sex and gender
• ethnicity
• socioeconomically disadvantaged groups
• older people
• people with impaired capacity to consent

Recommendations to improve cultural and linguistic diversity in clinical trials. Australian Clinical Trials Alliance

• Report PDF

Research involving Indigenous communities.

• Ethical conduct in research with Aboriginal and Torres Strait Islander Peoples and communities: Guidelines for researchers and stakeholders - NHMRC.
• Researching Indigenous Health: A practical guide for researchers. Lowitja Institute.
• Partnership for Justice in Health: Scoping Paper on Race, Racism and the Australian Health System. Lowitja Insitute.
  • This discussion paper considers what is offered by existing scholarship about race and racism in the health system, and helps identify a research approach to support the Australian Government’s National Aboriginal and Torres Strait Islander Health Plan’s (NATSIHP) vision of ‘a health system free of racism'.

Journal reporting guidance

• The Sex and Gender Equity in Research (SAGER) Guidelines. EASE (The European Association of Science Editors). Includes reporting checklist.
• Updated Guidance on the Reporting of Race and Ethnicity in Medical and Science Journals. JAMA Network.
• Journal Article Reporting Standards for Race, Ethnicity, and Culture (JARS–REC). APA.

Understanding Racial Bias

Racial bias - Catalogue of Bias

A distortion arising from systemic, institutional, interpersonal or individual forms of explicit (conscious) or implicit (unconscious) prejudice against individuals or groups based on social constructs of race or ethnicity that influences the planning, methods, results, interpretation, dissemination and application of health research. Read more...

Critically Appraising for Antiracism

Critically appraising for antiracism not only alerts a consumer of limitations in published research, giving them an idea of a study’s strength and methodological robustness, but .... also underlines the importance of diversity from the beginning of the research cycle, and ... supports researchers of the future to overcome these limitations.

Naicker’s Critically Appraising for Antiracism Tool. Critical appraisal checklist.

Articles

Improving diversity in medical research. Nat Rev Dis Primers 7, 74 (2021).

The Lack of Race and Ethnicity Data in Australia—A Threat to Achieving Health Equity. International Journal of Environmental Research and Public Health. 2023 Jan;20(8):5530.

Developing a roadmap to improve trial delivery for under-served groups: results from a UK multi-stakeholder process. Trials. 2020 Aug 1;21(1):694.

Trial Forge Guidance 3: randomised trials and how to recruit and retain individuals from ethnic minority groups—practical guidance to support better practice. Trials. 2022 Aug 17;23(1):672.

The forgotten, the ignored and the under-served – trials cannot continue to fail large parts of society. On Medicine. 2020.

 How do study design features and participant characteristics influence willingness to participate in clinical trials? Results from a choice experiment. BMC Med Res Methodol 22, 323 (2022).